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From: Leanne Martin <leanne_martin@hotmail.com> Date: Wed, 28 Oct 1998 17:59:17 PST Fwd Date: Thu, 29 Oct 1998 08:18:24 -0500 Subject: Re: CFS Newspaper Article >From: Max Burns <AlienHype1@aol.com> >Date: Mon, 26 Oct 1998 08:55:21 EST >To: Updates@globalserve.net >Subject: Fwd: CFS Newspaper Article >Subj: CFS Newspaper Article Date: 26/10/98 09:28:07 GMT From: >Doc Barry <docbarry@webtv.net> To: alienhype1@aol.com > The Denver Post Sunday, October 25, 1998 Page 11A SCIENCE >TODAY > Renaming Illness Debated Chronic-fatigue patients, researchers >seek more respect by Richard A. Knox The Boston Globe > It says a lot about chronic-fatigue syndrome in 1998 that a >main topic at a national conference on the subject in Cambridge >last week was what to call the elusive disorder. > > A spirited two-hour debate on whether to junk the current name >was "very polarizing," says one researcher. Patients and their >advocates insist that the "fatigue" label is pooh-poohed and >joked about among those who haven't experienced chronic-fatigue >syndrome, also called CFS. > > "The name sounds so trivial. People think, "Well, I get tired >by Friday afternoon, too", says K. Kimberly Keeney, executive >director of the North Carolina-based Chronic Fatigue and Immune >Dysfunction Syndrome Association of America. "The illness is >much more devastating than the name would imply." >> > No less a public health figure than Dr. Philip Lee, the former >U.S. assistant secretary of health and human services, declares >it's time to change the name. Scientists in the field are >sympathetic. > > After all, they have put up for years with colleagues who look >askance at their research on such an ill-defined (read >"imaginary?") disorder. But, researchers counter, what do we >call it when we can't yet agree on what its essence is? Is it at > >bottom a brain disease? A metabolic disorder? An immune >derangement? There's evidence for all and consensus on none. >"There's unanimity on one point: The current name is really bad >because it trivializes the illness," says Dr. Anthony Komaroff >of Harvard Medical School, one of the most respected CFS >researchers. "But we don't know enough to choose the right name. > >And we'd damn well better get it right and be prepared to live >with it for the next decade." > > Whatever it's called, whatever it is, there is new evidence >that many more people suffer from it - in the most strictly >defined terms- than many people think, or than previous studies >had demonstrated. A new $1.7 million study by the Centers for >Disease Control and Prevention - the largest and most rigorous >ever on CFS - has found that the syndrome afflicts 183 out of >every 100,000 Americans between the ages of 18 and 69. By >contrast, the previous CDC study found between four and nine >cases per 100,000 people. > The new study was based on 90,000 residents of Sedgwick County, >Kan., where Wichita lies - one quarter of the county's >population. Researchers identified about 4,000 people who said >they suffered serious fatigue for a month or more, and >interviewed them in greater depth. Among those, 500 appeared to >have the syndrome; researchers persuaded 300 of these to undergo >physical exams and lab tests. > Of the 300, a panel of physicians decided that 39 had bonafide >CFS by the most strigent definition. That definition requires at >least six months of severe unexplained fatigue plus four or more >of these symptoms: impairment in short-term memory or >concentration; sore throat; tender lymph nodes in the neck or >armpit; muscle pain; pain in multiple joints without >inflammation; unusual headaches; unrefreshing sleep, and >long-lasting malaise following exertion. > The most striking new information from Wichita is that CFS >rates are much higher among women than men - 303 cases per >100,000 for all adult women, 340 cases for white women. To put >the rates in context, chronic fatigue syndrome in adult women >appears to be less common than diabetes (which is more than >three times as prevalent) or high blood pressure (66 times more >prevalent). But it is roughly three to five times more common >than lung and breast cancer. (CFS is not considered fatal, >althuogh it often disables victims for years.) >== Doc Barry G'day Doc, Max & List, As a CFS sufferer I find this thread interesting. A point that may interest others is that a recent study was done here in Oz and it found that CFS is medically provable, in a majority of cases, via a simple physical. The trials were done at a uni here and found that those experiencing CFS at its most severe would 'hit the wall' - high levels of lactic acid (?) in the blood just like athletes - after a minute amount of effort (and often with no effort). Thankfully I am not in the worst category (yet?) with a few of the main symptoms (joint pain, sleep exhaustion, frail memory, etc.). But I find the lack of physical energy the most draining (in the way it seems to have a compounding effect on everything else). Double that with Adult Onset Attention Defecit Disorder (they may have started around the same time) and I lead an 'interesting' life (in the Chinese context). Regards, Leanne.
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